Wednesday, 8 September 2010

365 Days of MS

I have decided to change the title of the blog. Let's face it, this blog is about my MS. I want to record when the shadow, that walks behind me, becomes my enemy and shows itself.
I have to go for an MRI next week. The neurologist (we'll affectionately refer to him as Dr Death from now on) asked me if I have had any problems in the year since I saw him last. I said 'no'. The trouble with MS is that you are never really sure what consitutes a 'problem'. If my arm aches for half a day, is that because I lay on it funny, or because of the MS? If I can't remember someone's name for 10 minutes, is this me getting old or the MS?
The memory thing may be an issue. Last night I couldn't remember a poet's name and this morning I couldn't remember Terry Wogan's surname - I could remember that his name was Terry, but where the hell had the Wogan gone??? You may laugh, but am I losing my mind?
I have just finished writing my MA dissertation and what is ironic is that I chose to write it about a French philosopher named Henri Bergson, whose primary focus guessed it...memory! Bergson states that memory is required to guide any present action: we think before we leap. Memory, he says, is an active not a passive process. We interpret our world through our perceptions, we then recall those memory images from our past which will help us to engage with those perceptions and guide our path of current actions. So memory is the process of moving from the present to the past, and not the other way around. So, if I lose my memory, what will happen then?

No of days since last MS episode: 421


  1. Excellent plan! Will be avidly following you xxx

  2. I didn't know you had MS, Louise. I became rapidly more aware and knowledgeable about MS when my sister-in-law was diagnosed with it many years ago. I wish you the best of luck and hope that the shadow remains well and truly behind you for a very long time.